Danielle Boyce

Dr. Danielle Boyce is Director, Data Science and Biomedical Informatics and Principal Investigator, Real World Evidence at the ALS Therapy Development Institute. She is an experienced data engineer and analyst with graduate degrees in public health and public administration. She also serves as a faculty member at Johns Hopkins University, Biomedical Informatics and Data Science Section and holds affiliations with the University of Calgary and Emory University. In addition, she is a technical consultant for Data for the Common Good at the University of Chicago.

As the parent of a child with a rare disease, Dr. Boyce has served on several patient and caregiver advisory panels for the Patient-Centered Outcomes Research Institute, the U.S. Food and Drug Administration, as well as academic institutions, pharmaceutical companies, and nonprofit organizations. Her work focuses on helping researchers, clinicians, and patient communities use real world data to better understand disease and accelerate research.

She lives in upstate New York with her husband, Jim, and their four children. In her free time, she enjoys volunteering in her community, visiting museums, baking, and doing arts and crafts with her children.