Why you need a Health Data Spigot [90% Complete]
Why you need a Health Data Spigot [90% Complete]
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Why you need a Health Data Spigot [90% Complete]

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Last updated on 2019-10-28

About the Book

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About the Author

"e-Patient Dave" deBronkart
"e-Patient Dave" deBronkart

Cancer survivor “e-Patient Dave” is an international keynote speaker on healthcare and author of the highly rated Let Patients Help. An MIT management graduate with a career in high tech, he's accomplished communicator and healthcare visionary. A co-founder and chair emeritus of the Society for Participatory Medicine, he has appeared in TimeU.S. NewsUSA TodayWiredMIT Technology Review, and the HealthLeaders cover story “Patient of the Future.” His writings have been published in the British Medical Journal, Patient Experience Journal, iHealthBeat, and the conference journal of the American Society for Clinical Oncology. In 2009 HealthLeaders named him and his doctor to their annual list of “20 People Who Make Healthcare Better,” and he’s appeared on the cover of Healthcare IT News, Patient Safety & Quality Healthcare, and the Australian GP magazine Good Practice.

Table of Contents

  • Introduction: one patient's ten year odyssey in search of accurate health data
  • 2008: "A thousand points of fiscal pain”: a patient discovers healthcare’s Gordian knot
  • Matching post in 2017: American healthcare is a malignant tumor that can’t stop killing its host.
  • A cold day in hell, 2009: why I said yes to Google Health.
  • An information quality trainwreck: Google Health revealed the mess in my hospital’s data.
  • My health data errors exploded in the newspaper. Why?
  • A movement is born: “Gimme My Damn Data”
  • Does FHIR provide what Google Health tried to?
  • Yes, it DOES look like FHIR will enable Gimme My Data.
  • The #OpenAPS gospel: Dana Lewis sets DevDays on #FHIR.
  • Final post, June 17: HL7 makes it official: #FHIR exists to serve patient needs.
  • Epilog: The road ahead

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